Health and data
Health information systems, data protection in research, genomics and childhood cancer.
- Childhood cancer in Africa: the survival gap and what research can change
Why survival from childhood cancer is so much lower in many African countries than in high-income countries, the WHO Global Initiative for Childhood Cancer, and the research priorities that can narrow the gap.
- GDPR and health research: the rules researchers actually work with
How the EU General Data Protection Regulation applies to health research: personal and special category data, legal bases, the research exemption in Article 89, pseudonymisation, international transfers and the European Health Data Space.
- Genomics in public health: a plain guide
An independent guide to genomics in public health: what sequencing is, how it is used for pathogen surveillance, rare disease diagnosis, newborn screening and pharmacogenomics, and the equity, ethics and data questions raised by WHO.
- Health data and the SDGs: what gets measured, and how
How progress on the health-related Sustainable Development Goals is measured: the main data sources, why many countries lack timely data, interoperability standards, and initiatives such as WHO SCORE and the European Health Data Space.
